Sunday, March 2, 2014

Still Complicated

Unfortunately since the last post not much has changed, and we still don't know much.   Bennie had his MRI of his pelvis, but it was not conclusive enough to say for certain if the lesions were active melanoma metastases.  In order to be certain Dr. Weber, from Moffitt, said Bennie would have to have a bone biopsy of one of the bigger lesions.  We called his Melanoma team from MD Anderson and after spending a couple of days getting all of the Medical Records and CD images to them Bennie was finally scheduled for his bone biopsy.   He just had that done on Thursday morning.  Everything went pretty well with that.  We got to MD Anderson around 7:45 and at 8:45 he went back to the biopsy room with some sedation to help him relax.  They put him through a ct scanner and located the lesion.  Then they inserted the biopsy needle, and put him back into the ct scanner to make sure it was in the correct place.  They had to hammer it in once they were sure it was were they needed to be, and got a sample of the bone.  The whole thing took about 45 minutes.  Bennie was a bit sore the next day, but not too bad!  We will be getting those results of the bone biopsy on Thursday at his Dr.'s appointment.  That appointment will determine if Bennie could possibly still go for the trial in Florida, or if he needs to start on a different treatment.  So next week is a big week coming up.  He also has a brain MRI on Monday night, and we will visit with his neurosurgeon on Tuesday morning to see how all that is coming along.  If either the brain MRI or the biopsy show any melanoma tumors at all then Bennie will not be eligible for the trial in Florida, and we will be starting some type of treatment at the end of the week.  We are very tired of all the waiting, and we are anxious about what the next steps will be in the melanoma journey.  We both wish we could fast forward to the end of the week, because it's always easier knowing all the information and being able to put a plan in place and START!!!!!   We still really, really want a shot at the trial in Florida so there is a lot of anxiety going into this week. 

So prayers are appreciated for everything to be CLEAR!!!!!!!!!!!

Hopefully we will have all the answers that we have been waiting for by Thursday. 

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