Emmi has been having a hard time adjusting to us leaving for Florida every two weeks. She gets herself worked up a couple of days before we go, and it's hard for us too!! She went to Florida with us by car the week that Bennie was enrolled into the clinical trial, because we had no clue how long we would be down there. We only leave for 24 hours now, because we go by plane .... But Emmi was with us on the 22 hour car trip. In her mind Florida is far, far away that takes two days to get to! We thought it would be a good idea to let Bennie take her on one trip to Tampa, since now his infusion is only 1.5 hours long, and he hasn't ever had an adverse reaction to it (hopefully never will!). We thought this trip would help her to process how quick the flight is, and how quick the Dr.s visit goes by. She has seen Bennie at his worst in ICU before brain surgery, so we knew this would be a piece of cake for her. She was also super excited to be his caregiver, and take over "Mommy's role".
They left a little earlier the day before, because Bennie wanted to take her to do a little something fun other than a hospital visit! We watched The Dolphin Tale (a pretty good movie if you need one to watch) a couple of months ago, only to realize that it took place in Clearwater beach which is right outside Tampa. So, Emmi and Bennie went to the clearwater beach aquarium to see Winter and Hope (the dolphins from the movie). They had an awesome time, and Emmi even got to demonstrate how Winter's prosthetic tail works (his tail had to be amputated due to infection).
Here they are at the aquarium:
The next morning they went for Bennie's infusion. Emmi was a champ at the Dr. and got to meet all the staff that takes care of him. It was awesome to hear her talk about Mrs. Melissa (the nurse practitioner) and all the areas of the hospital. Now when we mention something she can picture it in her head, and hopefully deal with everything better since she knows the routine firsthand!! I was glad to have both of them back home safely!
Here they are during his infusion:
Bennie is feeling well, and getting more energy back since he is down to just the nivolumab (pd1) now. His liver is still a little elevated, so he will get that checked here at home with blood work just to make sure it's staying at a safe level. Hopefully he won't have to miss a dose because of that! But so far so good!!
Ol' Benny Lunsford. Could he slow down if he wanted to? I've been watching the blog since April last year when he forwarded it to me. None of it surprises me; I always said he's a trooper through and through. It's good to see him out enjoying family life.
ReplyDeleteGood luck and godspeed, Lennie Bunsford.
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