Don't Stop Believin'

Bennie and I came into Md Anderson laughing that we should change the harp music to a cover band of Journey singing Don't Stop Believin, or Queen singing We are the Champions. We left Md Anderson a lot sadder.  We got broad sided.  We knew his tumor grew a lot.  But we thought they would just come in and say... oh the treatment didn't work, but here is plan B.  Well they told us the treatment didn't work.  They also said he has many tumors in his lung, one in his liver, his hip bone, and his hip muscle tumor grew very large.  So. That. Stinks.  Then if we hadn't been sucker punched enough, they told us his cells they were harvesting didn't grow.  So surgery and chemo for 2 months was for nothing.  Wow.  So, the plan is now to start a drug called Zelboraf that targets the gene mutation he has for 2 months.  That is a pill that he can take at home.  The side effects for that can be a bad rash, severe sun sensitivity, severe joint pain, and probably others they just let you find out about on your own.  Then he will do biochemotherapy around the end of May.  He will get admitted for biochemo for a week at a time.  Then they will rescan and give us good news then.  You fall down twice... stand up three.  We are going to disregard this day, and enjoy Emmi's 6th Birthday and Easter.  We also told Emmi specifically that Bennie has Cancer and not just a BooBoo.  MD Anderson gave us a kit for her age specifically, and a social worker told us how to communicate all this with her.  She was crying yesterday when we told her we had to go to the Dr. this morning, and she seems to understand the conversation we had with her today.  They gave us emotion colored bracelets that we can wear with her depending on our day.  Praying that this new drug doesn't come with a truck full of side effects, and it helps really really quickly.  We aren't too devastated yet.  We still laugh, and have quite the sense of humor about this.  Once insurance says they approve this drug we will go pick it up from the pharmacy and wait and see what it does.